RIAAN RESEARCH INITIATIVE INC
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Mission Statement
Riaan Research Initiative is dedicated to advancing, accelerating, and funding translational scientific research to generate treatments for severe and lethal neurodegenerative genetic disorders that impact the pediatric population. We aim to identify and facilitate projects to improve the lives of patients suffering from conditions lacking approved therapies such as Cockayne Syndrome, a neurodegenerative genetic condition that is almost always fatal in children. We will work to bring together disease and translational experts with each other and affected patient populations, fund intelligent projects aimed at accelerating biotech advancements into treatment, and inform our medical and patient community about relevant research developments. We will fund identified projects by way of grants to researchers and academic institutions. The projects we currently support include Cockayne Syndrome gene replacement therapy development at the University of Massachusetts Chan Medical School, and drug repurposing experiments with Rarebase, a public benefit biotech company, and Charles River Laboratories. To learn more about us, please read our latest piece in SheKnows Magazine: https://www.sheknows.com/health-and-wellness/articles/2537892/jo-kaur-riaan-research-cockayne-syndrome/.