HEMOPHILIA FOUNDATION OF NORTHERN CALIFORNIA
This organization has already been registered
Someone in your organization has already registered and setup an account. would you like to join their team?Profile owner : d******r@h************n.o*g
Mission Statement
In 1958, HFNC began as an effort to raise awareness for a small group of hemophilia patients. Today, we provide advocacy, support, and resources to over 3,000 Northern California families (in 47 counties) with a myriad of inherited and acquired blood related conditions.
About This Cause
The Hemophilia Foundation of Northern California (HFNC) serves families with life-threatening blood disorders, factor deficiencies, and rare clotting conditions through enhancing quality of life by providing support, education, outreach, advocacy and research through our affiliated national foundations. One of our feature programs offered to our community: Our award winning Camp Hemotion is an annual week-long residential summer camp serving approximately 100 young people, ages 7-20, living with bleeding disorders, known carriers, and their siblings. One of the first camps to focus on this constituency in the country, Camp Hemotion is widely recognized as a model program. In its 39 years of existence, Camp Hemotion has served as HFNC's primary way to reach young people and provide them with the tools they need to overcome the challenges presented them by their illness and lead healthy, vibrant and, importantly, full lives. Specific strategies employed during the Camp session to bring about these outcomes include: Self-infusion training - medical professionals help campers learn how to mix their own medicine and inject intravenously into their arm or hand as easily, painlessly and effectively as possible. This is an important right of passage for children with Hemophilia as most often their parents have performed this task since they were infants. Learning self infusion is a critical step toward independence, as the intravenous medication is required sometimes as often as daily to sustain life for people with hemophilia.