FAMILY CAREGIVER ALLIANCE
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Mission Statement
The mission of Family Caregiver Alliance is to improve the quality of the life for family caregivers and the people who receive their care. Our Values: Respect - We believe caregivers, their relatives/friends who need assistance and their extended families should be the decision makers in care. Options - We are committed to increasing the range of choices available to families to suit their particular situations. Quality - We are committed to quality and to providing the best of what's available, through timely, prompt service, well-trained staff and up-to-date information. Innovation - We strive to be a knowledge organization, developing or incorporating new service models and creating partnerships between research and service. Diversity - We are committed to serving the diverse and changing population of caregivers. Collaboration - We form partnerships with other organizations and agencies to further our mutual aims. Efficiency - We seek to use our resources to the fullest, waste nothing and stand ready to account for what we do.
About This Cause
"I am a caregiver because of love. It's a lot of work but it's worth it. I contacted FCA because I needed so much help and guidance to face problems I didn't have a clue how to resolve...” (Blanca, Caregiving wife in San Francisco) Bianca cares for her husband, who has advanced Alzheimer's disease. Over the years, Bianca has used short- term respite from Family Caregiver Alliance (FCA) to get much needed breaks from 24 hour a day caregiving. Bianca and her family also benefited from a legal consultation grant from FCA to help her and help her family plan for care over the long term. In addition to knowing that she can call her FCA Family Consultant whenever a care issues arise, Bianca is also a dedicated member of the Spanish-speaking support group FCA operates in San Francisco where she finds mutual support from other caregivers with similar situations and cultural experiences. “FCA has provided me with enormous knowledge and help in this difficult time.” (Blanca, Caregiving wife in San Francisco) For more than 35years, Family Caregiver Alliance has offered programs to support and sustain the important work of families and friends caring for loved ones with chronic, disabling health conditions. Blanca is a real FCA client. Every caregiving situation including hers is unique. FCA offers low-cost and services free of charge to the caregiver that are tailored to a family's unique needs. We help families with their caregiving needs in many ways including: information about a chronic disease to information about community resources, care planning and counseling, facilitating family meetings, caregiver training and education to manage challenging behaviors, control frustration and/or to practice caregiver self-care. FCA provides vouchers for respite assistance (time off), legal and financial consultations for estate planning and to manage the cost of caring, support groups, caregiver retreats, and our 'camp for caring' where the caregivers gets a weekend to themselves while the person they care for goes to camp! We have been in over 10,000 homes of caregiving families over the years. And each time, we consider it a privilege to be invited in, sit down and talk about care needs, planning decisions and provide the practical advice, services and support that is needed throughout each family’s caregiving journey. In a typical year, serve more than over 3,000 caregiving families with tailored information, care planning, counseling, training, respite, legal consultation, caregiver retreats, weekend “camps for caring” and peer groups. Over a million caregivers and professionals use our website, caregiver.org, for information, to sign up for an online support group or download or email our consumer fact sheets and policy briefs. FCA Bay Area Caregiver Resource Center (CRC) For residents of the six county San Francisco Bay Area, FCA's Caregiver resource Center (CRC) serves as a point of entry to specialized caregiver services. We work with families caring for someone with an adult-onset brain impairment such as Alzheimer's disease, stroke, Parkinson's, MS, ALS, Huntington's disease, Traumatic Brain Injury, AIDS dementia and brain tumor, regardless of the care recipient's age. We also assist family caregivers of adults 60 years old or above, regardless of caregiver income-level or loved one's diagnosis, in the following counties: Alameda, Contra Costa, Marin, San Francisco, and San Mateo. Services Include: - Family consultation, information and referral to locate resources to help. - Mentoring by a FCA Family Consultant who is a master degree level professional in social work or a related field. - In person cognitive behavioral counseling and emotional support by phone. - Our popular classes and workshops like Caregiver College offering hands-on skills training, helping caregivers to understand and better communicate with a loved one and learn to deal with their own complex emotions. - An in-depth in-home caregiver assessment to help define the individual's care situation - Care planning sessions to help a caregiver find the resources they need to care both for their loved one and for themselves. - Information about FCA's legal, education, counseling and respite vouchered services - Assistance with long-term planning and support needs - Personalized referral to local resources and community programs (support groups, adult daycare, home-care) - Ongoing telephone support and consultation. (We do host an eight-hundred number: (800) 445-8106, as well as accept local—San Francisco Bay Area—calls at (415) 434-3388 - Education resources both online and printed (with our most popular fact sheets also available in Chinese, Spanish, Korean and Vietnamese). - Connections newsletter to keep caregivers and caregiving professionals abreast of caregiver related news and events, - Workshops and classes and retreats in the S.F. Bay Area help with stress management and teach practical skills (for health conditions and behaviors.) - Three online Support Groups (Caregiver, LGBT Caregiver and Link2Care for Dementia care) for peer support, to share ideas, resources and sometimes to just plain vent. FCA National Center on Caregiving (NCC) For policy makers, elected officials, the media, caregivers and service providers beyond the SF Bay Area, FCA’s National Center on Caregiving (NCC0 was established in 2001 as a program of Family Caregiver Alliance. The NCC works to advance the development of high-quality, cost-effective policies and programs for caregivers in every state in the country. Uniting research, public policy and services, the NCC serves as a central source of information on caregiving and long-term care issues for policy makers, service providers, media, funders and family caregivers throughout the country. NCC services include: - Family Care Navigator: a first-of-its-kind, state-by-state, online guide to help families in all 50 states locate government, nonprofit, and private caregiver support programs. The easy-to-use Navigator lists programs for family caregivers as well as resources for older or disabled adults living at home or in a residential facility. It also includes information on government health and disability programs, legal resources, living arrangements, disease-specific organizations, FAQs, a glossary and more. There is no charge to use the Navigator. - Caregiving Across the States: (2012 - latest version) Background characteristics related to caregiving and aging as well as information on publicly-funded caregiver support programs for all 50 states - Caregiver Alerts/State & National Policy Initiatives: the NCC tracks state and national legislation of importance to policymakers, legislators, advocates, researchers, caregivers, providers and the disability and aging communities. - Caregiver Information & Assistance: Daily on our 1-800-number, by email or through our website www.caregiver.org we receive and respond to requests for personalized help to identify local resources and services for families, caregivers and providers nationwide. FCA's peer reviewed and popular fact sheets and publications are available on a wide array of chronic health conditions care planning, legal issues and more. - Research & Publications: NCC policy briefs and research studies document current issues, caregiver needs, services and best practices. Our online newsletter, Caregiving PolicyDigest, highlights legislation, research, policy changes, events and new program developments. - Training: specialized educational programs, professional seminars and conferences. Families provide 80% of the long-term care in this country. FCA services, education programs and publications are developed with caregivers’ expressed needs in mind, to offer real support, essential information, and tools to manage the complex and demanding tasks of caregiving. Caregivers are the unheralded and often unrecognized backbone of our healthcare system. Without the unselfish contributions of energy, time and money given every day by millions of Americans, not only would their loved ones suffer, but our healthcare system would collapse. We owe it to our caregivers to take good care of them too. At FCA we know that resources are important and we are committed to being good stewards of the donations we receive. For every dollar we spend, 90 percent of it will go towards our life-changing programs, with less than 10 percent used for overhead and administration. Check us out on Guidestar. Visit www.caregiver.org or call (800) 445-8106 for more information. We look forward to talking with you.